Thursday, October 5, 2017

In 4-year-old girl a disease that does not even have a name

Four-year girl suffering from a rare disorder that does not even have a name. The girl uncontrollable vomiting, and it can not survive even up to six years.


 In 4-year-old girl a disease that does not even have a name  Genetic disease


Little Englishwoman Ava Gallie I was the victim of a rare genetic disease . that she does not even have names yet. The child barely eat, and during This process is constantly sick girl, so she needs a 24-hour care. Because of this, her mother had to quit her job to devote self-care daughter.


 In 4-year-old girl a disease that does not even have a name  Genetic disease


Doctors believe that a child dies shortly after birth, but Ava survived. Since the largest the difficulty her family began the process of feeding. The girl did not know how to take the breast and breast milk made her vomit. Home child was discharged only after 4 months after birth, but the first three years of life Ava almost constantly lying in hospital.


In addition to the unknown genetic disease   the child suffers by microcephaly (an unusually small skull). Ava has learned with great difficulty to go through a special frame. It is still not able to speak or to eat their own. In addition, uncontrolled nausea It continues, leading to persistent infection thorax.


The girl needed a special bed, pump for feeding and medical attention. Sami doctors now believe that Ava is not will live up to 6 years, but the child's mother does not believe it, because once they have mistake with the forecast. But the most difficult for parents - do not know what it is their child is sick. After all, this is what makes it such an uncertain future. (READ MORE)



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